Teleconference "Amyotrophic lateral sclerosis. Every move matters"
Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease that is accompanied by the destruction of central and peripheral motor neurons, characterized by a progressive course and death.
The disease was described more than 150 years ago, but its etiology and pathogenesis remain not fully understood, differential diagnosis causes difficulties, and treatment methods are still being developed.
ALS is a serious medical and social problem.
Almost 3 000 health care specialists have registered to participate in the Teleconference "Amyotrophic Lateral Sclerosis. Every move matters".
The Teleconference agenda consisted of two topical units of reports: «Sharing clinical experience. Focus on a patient with ALS», «Right to life of orphan patients».
Six main reports were offered to the participants for review and discussion and they were dealing with the following issues:
Amyotrophic Lateral Sclerosis. Tender points: testing, pathogenic treatment, patients’ rights
False negative testing of Amyotrophic Lateral Sclerosis
Opportunities of genetic testing of motor neuron disease
Family forms of Amyotrophic Lateral Sclerosis
Legal aspects of obtaining medical care by the citizens suffering with rare (orphan) diseases
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